The Multimorbidity Challenge: A Personalised Care Approach
Thursday 26th September 2024
Thank you to everyone who joined us for Personalised Care Week and our Virtual Annual Conference on 26th September 2024! Your participation made the event a huge success.
From Monday 23rd September to Thursday 26th September 2024, we hosted 5 webinars and a half day conference focussing on key aspects of multimorbidity and personalised care, featuring expert-led sessions on innovative and practical healthcare approaches.
The week started on Monday with Dr. Naomi Launders discussing the burden of physical long-term conditions in people with severe mental illness, followed by a webinar on Bath Centre for Fatigue Services: The Provision of Personalised Care for People with Complex Fatigue with Dr Anne Johnson.
On Tuesday, September 24, Dr. Camille Hirons presented on Lifestyle Medicine, and Ali Smith and Anjie Chhapian led a session on using the “The Swiss Army Knife” approach to caring for someone with multi-morbidity.
Wednesday, 25th September saw a PCI Showcase delivered by PCI Training Providers featuring Professor Alf Collins (TPC Health), Dr Ollie Hart (Peak Health Coaching) and Lindsay Oliver (Year of Care Partnerships). They were joined by Dr Matthew Dolman (CCIO – NHS Somerset) and looked at patient priorities, proactive care and how the personalised care team can support multimorbidity care. These webinars laid a strong foundation for the final conference, focusing on practical and inclusive healthcare solutions.
Thursday marked the culmination of Personalised Care Week with a half-day conference focused on “Multimorbidity and Personalised Care: Meeting the Changing Needs of Our Population.” Dr. Emma Hyde opened the conference by outlining the agenda, followed by a keynote from Sir David Haslam emphasising the patient-first approach in healthcare. Alison Finney shared insights into how personalised care impacts patients’ lives, while Charlotte Nicholls discussed what effective personalised care for individuals with multiple conditions should look like.
Dr. Brenda Hayanga highlighted ethnic inequalities in healthcare for people with multiple health conditions. Prof. Sam Harrison spoke on innovative approaches to patient and public involvement in managing chronic breathlessness, and Prof. Miles Witham discussed transforming hospital care through the ADMISSION research collaborative.
The afternoon featured poster presentations showcasing cutting-edge research, including personalised care in mental illness and podiatry services. Dr. Chloe Stewart then presented on patients becoming part of the healthcare workforce, followed by David Gilbert, who echoed the growing role of patients in healthcare planning and service delivery. Dr. Emma Hyde concluded the day with final remarks, wrapping up an insightful week focused on advancing personalized care for people with multimorbidity.
On demand recordings of all of these sessions are available through subscribing to PCI Plus
The PCI is delighted to have achieved Patients Included status, which demonstrates a commitment to incorporating the experience of patients as experts in living with their condition while ensuring they are neither excluded or exploited.
Find out more about the Patients Included charter here and click here for our statement on how the PCI has met the charters five clauses.
PCI Conference 2024 Agenda
Summary:
Too much of healthcare is designed around the needs and interests of the system, rather than our patients. Multimorbidity is seen as a challenge, rather than the norm. It’s time for a rethink.
Brief Overview:
- Why we need to understand and focus on multimorbidity
- Why healthcare has evolved the way it has
- How this impacts on real patients, and what we can do about it
Learning outcomes:
- How and why we misunderstand guidelines
- How we can change our focus
- Those who are interested in Personalised Care will feel supported and reassured
- In a time of healthcare challenge and low morale, there is a different potential future
Brief Overview:
This session will bring to life the realities of living with a chronic condition; dealing with multiple specialisms; and the difference personalised care can make.
Learning Outcomes:
- You’ll hear examples of the simple behaviours and attitudes that really make a difference to patients living with chronic conditions.
- You’ll see how seeing the patient as a whole, rather than just a disease makes such a difference, and how shared decision making can lead to patients who feel empowered and engaged.
empowered and engaged.
Brief Overview:
- Presents our findings from people living with multiple long-term conditions – challenges and solutions.
- Outlines the implications for healthcare professionals re: delivering personalised care and MDT working.
- Considers how growing multimorbidity can be reflected in the new government’s Ten Year Health Plan.
Learning Outcomes:
- Hear the findings from the Richmond Group’s multi-year Taskforce for Multiple Conditions – the main challenges and solutions from a patient perspective.
- Increase awareness of how best to meet the needs of patients with multimorbidity
- Learn about innovative place-based models delivering personalised care.
Summary:
People with multiple long term conditions (MLTCs) tend to have poorer quality of life and a higher risk of early death compared to people with fewer conditions. Some studies suggest that people from minoritised ethnic groups have a much higher risk of developing MLTCs and do so at an earlier age than white people. There are also studies that have found ethnic differences in how much a patient uses health services and the quality of care they receive, however, the evidence is unclear.
Brief Overview:
We conducted a study to investigate whether there are ethnic
inequalities in healthcare use and care quality among people with MLTCs and how these inequalities can be addressed. We wanted to produce evidence that can be used to improve care for people with MLTCs from minoritised ethnic groups
Summary:
We will present examples of some of the creative approaches we have used to work collaboratively with patient and public involvement and engagement members to 1. understand the complex interplay between symptoms of breathlessness and poor balance 2. to design a novel Intervention (walking football) for people with breathlessness and 3. to disseminate findings in an accessible way.
Brief Overview:
- Aim: To offer examples of how to involve PPIE members in innovative and creative ways which are fun, inclusive and informative.
- Key themes: PPIE; creative arts; co-design
- Importance: Almost all funding bodies recommend PPIE be undertaken. Ensuring this is done in an inclusive and meaningful way helps to ensure that, not only is research funding awarded to areas of need, but that the findings gleaned are impactful.
Learning outcomes:
- Learn – a range of creative and innovative approaches to PPIE
- Improve – a more inclusive approach to PPIE will ensure more voices are heard, improving the relevance, scope and potential reach of research and its implementation into clinical practice.
- Benefit -the benefits of contributing as PPIE members are multifaceted (psychological, social). Research which does involve PPIE members in a meaningful way is more impactful, improving care and benefiting patients.
Summary:
This talk will outline the challenge of delivering high-quality, person-centred care in hospitals for people living with MLTC, and identify where the current system is failing to deliver. I will then outline how research from the ADMISSION research collaborative is seeking to better understand how people with MLTC move through hospital systems using routine data, interviews with people living with MLTC, and interviews with clinicians caring for people with MLTC in hospitals. Finally, I will outline possible alternative models of care that could be built upon to improve on our current systems.
Brief Overview:
To showcase how research is helping to address the challenge of delivering high-quality, person-centred care for people living with MLTC admitted to hospital
Key themes:
- Tension between specialist care of individual conditions vs integrative care of multiple conditions
- Lack of information on how people with MLTC admitted to hospital are cared for
- Potential models of care that might unlock this challenge
Learning Outcomes
- Understand the challenges of our current model of hospital care for people with MLTC
- Understand how research from the ADMISSION collaborative is helping to understand and address these challenges
- Consider alternative models and exemplars of good care which could be built on in practice
Poster presentations from:
Dr Laura Charlesworth – Enabling coping in people living with severe mental illness and cancer: the importance of personalised care.
Sean Paul Carroll –
Alexander Phillips – Evaluation of a novel Functional Neurological Disorder(FND) Care Advisor service.
Julie Taylor – Personalised Care: A Cultural Shift to Improve Sustainability of Podiatry Services
Lindsay Oliver – Using the Year of Care Approach to Personalised Care and Support Planning to Deliver Proactive Care in North Cumbria.
Summary
Outlining the role of health psychology and taking a bio-psychosical approach to MM and new models of care
Brief Overview:
The emergence of patient leadership and the role of a Patient (Lived Experience) Director are revolutions in the NHS – the advent of such concepts and roles means that a new career pathway can be envisaged, one which legitimises the development of an experiential workforce that can help the NHS focus on what truly matters to people.
Learning Outcomes:
People will learn about:
- The emergence of patient leadership and critique of the engagement industry
- The role of a Patient Director – what it is and why it’s needed (and challenges in embedding such a role)
- How patients might form a new experiential workforce
- People will be able therefore to help provide opportunities and support for such a new workforce.
2024 Conference Speakers
Sir David Haslam
Sir David Haslam is, amongst his many notable achievements, the former Chair of the National Institute for Health and Care Excellence (NICE), as well as a former President and Chair of the RCGP and a past President of the BMA. He is currently Professor of General Practice at the University of Nicosia, a Non-Executive Director of Dorset Health NHS University NHSFT, and chair of the charity ‘Young Lives vs Cancer’. He is a notable writer and healthcare policy consultant.
Alison Finney
Diagnosed with Type 1 diabetes in childhood, Alison grew up realising that the best healthcare happened when the patient was at the heart of every decision. Professionally Alison is a law graduate with 20 years’ experience in managerial roles in a FTSE 100 company, specialising in transformation, communication and engagement. She’s regularly found wherever a strong patient voice would make a difference. She was a trustee of the national charity Diabetes UK for 7 years, was a lay expert on the recent NICE assessment for the next generation of hybrid closed loop insulin pumps and spent several years as Chair of her local Maternity Voices Partnership.
Charlotte Nicholls
Charlotte leads on national influencing and political engagement at The Richmond Group of Charities coalition, focussing on improving care for people living with multiple health conditions. Charlotte started her career in the charity sector at Macmillan Cancer Support, gaining experience in User Involvement and Health Inequalities, Evidence and Public Affairs.
She joined the Richmond Group from the Stroke Association, where she worked for nearly 6 years, first in Public Affairs and then leading the wider Policy & Influencing team.
Dr Brenda Hayanga
Dr Brenda Hayanga is a Presidential Fellow based at City, University of London in the Department of Health Services Research and Management. My research examines ethnic inequalities in health. I am interested in how individual-level processes intersect with social, historical and structural processes to shape the health outcomes of minoritised ethnic groups.
Dr Samantha Harrison
Dr. Samantha Harrison is a Professor in Respiratory Rehabilitation at Teesside University, UK. She is a chartered physiotherapist with an international research profile in respiratory rehabilitation. Samantha completed her PhD part-time in the School of Psychology, University of Leicester (2014), whilst working at Glenfield Hospital, Leicester in the pulmonary rehabilitation department where her time was split between research and the clinical service. In 2013 Samantha moved to Toronto, Canada to complete her international post-doctoral training in chronic obstructive pulmonary disease (COPD).
Professor Miles Witham
Miles Witham is Professor of Trials for Older People in the AGE Research Group at Newcastle University. He is co-lead for the Ageing, Sarcopenia and Multimorbidity Theme, NIHR Newcastle Biomedical Research Centre, theme lead for Ageing and Long-Term Conditions, NIHR Newcastle MIC, and honorary Consultant Geriatrician at Newcastle upon Tyne Hospitals Foundation NHS Trust.
Dr Chloe Stewart
Dr Chloe Stewart is Clinical Head of Personalised care within NHS Sussex and a National Specialist Clinical Advisor for Personalised Care and MSK Conditions at NHS England. Chloe has a specialist interest in person-centred healthcare and the use of behavioural science. She is an experienced coach, facilitator, and strategic leader/advisor. Chloe is a Chartered Psychologist with the British Psychological Society and is registered with the Health and Care Professions Council as a Practitioner Health Psychologist.
David Gilbert
David Gilbert has 40 years’ experience as a health activist and co-production specialist. His work is all about supporting people who have been through hard times, such as significant health conditions, to get a second chance in life and power in the system – to be equal partners in decision-making at all levels. “I believe that people bring jewels of passion, wisdom and insight (leadership qualities) from the caves of suffering.” David was the first Patient (Lived Experience) Director in the NHS and is founder Director of InHealth Associates - a network of patient leaders and specialists in engagement. He writes a monthly Patient Leadership Newsletter. His work spansservice engagement in design and delivery, research, training, education and regulation (professional, organisational, medicines) at local, national and international levels. David has had significant mental health issues and am currently rebuilding. David is also a pioneer of 'patient (lived experience) leadership' and author of ‘The Patient Revolution – how we can heal the healthcare system’.